Northwest Tribal Registry Project
Mission:
The Registry Project works with state health bodies to correct racial misclassification, thereby increasing the quality of disease surveillance data for American Indians and Alaska Natives (AI/AN) in Idaho, Oregon and Washington.
Goals:
- Ascertain amount of racial misclassification in disease registries.
- Obtain accurate estimates of disease burden for Northwest AI/AN.
- Use linked case information to generate health status information for tribes and health programs.
- Repeat linkages at regular intervals to build health trend data over time.
- Correct misclassification in state cancer registries
Strategies:
- The Registry Project utilizes probabilistic linkage software to match Northwest Indian Health Service Resource and Patient Management System (RPMS) records to state health records and verify correct racial classification in state data.
- The Registry Project provides technical data assistance including cancer and other health statistics to tribal health professionals and community health advocates.
- The Registry Project works with the Northwest Tribal Cancer Control Project to disseminate cancer data and identify tribal cancer data needs.
Tribes Served:
The Registry serves the 43 federally recognized tribes in Idaho, Oregon, and Washington.
Funding:
Project activities are funded by multiple sources: the National Cancer Institute through yearly grant, first awarded in 1999, current funding 9/15/2006-9/14/2007; Northwest Tribal Epidemiology Center grant (Indian Health Services), U1B9400001/10, current funding 09/16/2006 – 09/15/2011; Northwest Tribal Cancer Control Project (Centers for Disease Control and Prevention), U55.CCU021985-02, current funding 7/1/2003-6/30/2007; Northwest Tribal Cancer Navigator Project National Cancer Institute, 1U01 CA116925-01, current funding 9/25/2005-8/31/2010.
